Transforming caregiving for Dravet and Lennox-Gastaut syndrome caregivers
A digital care platform designed to simplify the caregiving journey and empower families to better manage the long-term care management of their loved one. Explore features tailored for the challenges of caregiving for a loved one with Dravet or Lennox–Gastaut syndrome, from personalized care guides to seamless scheduling, and effortless collaboration among caregivers.
Why CareCompass?
Managing the care of a loved one with Dravet or Lennox-Gastaut syndrome is challenging.
Caregiving is complex, and every family’s needs are unique.
Customized Care Guide
A care guide that is built around your loved one’s journey.
Seamless Sharing
Grant your care team access to critical information in a few simple steps.
Integrated Care Solutions
Centralized management of medications, schedules, and daily routines.
Secure Solution
Complete control of who sees your care guide content, all held on a secure system.
Features designed to support your
caregiving journey
The Essentials
Keep track of your loved one's vital details in one place.
Care Team Collaboration
Invite your loved one’s care team to access specific parts of the care guide. You decide who can see what, ensuring sensitive information is only shared with the right people.
Care team members can view selected shared content and can add suggestions on certain content, creating a collaborative care environment that keeps everyone aligned and informed.
Medications & Allergy Management
Document key information about medications and track allergies with ease.
A Safe Space for Journaling
Document emotions and health updates in a safe space to help you navigate your emotional journeys. The caregiver’s journal provides a private place to reflect on your own well-being, whilst the loved one’s journal provides a place where all members of your loved one’s care team can record updates on the loved one’s well-being and journey. Use these journals to better understand patterns in overall well-being, track health changes, and support your loved one through every challenge.
Build a Care Guide
Document key details about your loved one’s care with ease, and share selected chapters with your care team, helping everyone to have the right information when they need it.
Start with pre-defined chapters as a guide, or create your own to personalize the care guide to suit your specific needs.
Personalized Care Schedule
Visualize your loved one’s care schedule, including:
Seizure Action Plans
Document, upload, and share detailed Seizure Action Plans for any type of scenario. Include step-by-step instructions, pictograms that depict what the seizures normally look like, and even share via a QR code for quick access.
Easy to ShareEasily share with key contacts such as family, school, or emergency contacts.
Print and Secure LinksPrint plans or generate secure links for distribution.
Why Our Users Love CareCompass
CareCompass has transformed the caregiving experience.
"Having all of [my loved one]’s information in CareCompass gives me peace of mind that she can be cared for in the event that I am unable to be there.""Looking back, if I had CareCompass at the beginning, I would have known what to think about and document. Utilizing the prompts given, I think it would have helped me in my journey when communicating with multiple doctors, therapist, etc. I am excited to use it!""[CareCompass] gives a sense of purpose and something [caregivers] can actually do. The fact that it is not only a seizure tracking tool, it also has a journal feature that would help when reflecting back on the LGS journey, especially the early days and the chaotic ones that often feel like a blur. It’s like running a small business to care for a person with LGS, so it helps to manage that business.”
Getting Started
Is Simple
Create your loved one’s profile.
Answer a few basic questions about your loved one to set up your account.
Build the care guide.
Use the intuitive modules to create a customized care plan for your loved one, including detailed health information and emergency action plans.
Share with the care team.
Easily add care team members, share specific modules, and start collaborating.
Free to Use!
Join CareCompass Today!
Sign up now to see how CareCompass can simplify the caregiving experience for those with a loved one living with Dravet and Lennox-Gastaut syndromes. Whether you’re tracking daily health updates, managing complex medication regimens, or coordinating care across multiple providers, CareCompass gives you the tools to confidently support your loved one’s needs.
Intended for caregivers or care providers of people living with Dravet or Lennox-Gastaut syndrome. The caregiver or care provider must be over the age of 18 and a legal resident of the United States.
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CareCompass™ is a trademark of the UCB Group of Companies.
©2025 UCB, Inc., Smyrna, GA 30080. All rights reserved. V2.2.5991 US-FA-2400470
The system was designed to help caregivers navigate some of the care needs of their loved ones. Access to and use of CareCompass is the responsibility of the user and does not in any way replace the clinical decision-making process which remains the exclusive responsibility of healthcare professionals. Please refrain from uploading or sharing any sensitive personal data, such as social security numbers or credit card information.CareCompass™ is a trademark of the UCB Group of Companies.
© 2024 CareCompass. All rights reserved.
The system was designed to help caregivers navigate some of the care needs of their loved ones. Access to and use of CareCompass is the responsibility of the user and does not in any way replace the clinical decision-making process which remains the exclusive responsibility of healthcare professionals. Please refrain from uploading or sharing any sensitive personal data, such as social security numbers or credit card information.